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Invisible Disabilities Awareness Week

▪️In the U.S., Invisible Disabilities Awareness Week is October 20th – 26th, 2024. ▪️I live with Fibromyalgia, Ankylosing Spondylitis, Arthritis, Migraine Disorder...

I didn't even know how to pronounce Sarcoidosis

I'm 48 years old I was diagnosed with a rare disease called Sarcoidosis in 2010. I told my dr u have what...

Do You Deal With Imposter Syndrome? Let's talk!

Hello everyone. There was recently a topic posted by Admin about dealing with Imposter Syndrome. It hit home. It's not something I...

Coping with a New Diagnosis and Managing Side Effects

Here's a structure to guide the discussion: Introductory Post: "I was recently diagnosed with [OCD]. I'm still learning about the condition, and...

Advocacy Cliques

This may be a touchy subject but here it goes. Have you ever experiences advocacy cliques during your advocacy of your specific...

Misconceptions

What are some common misconceptions people have about patient advocacy?...

Are you passionate about sharing your journey with chronic pain conditions?

Do you want to inspire others and spread awareness about living with illness? We want to hear from you! Become a guest...

Who to contact about a study opportunity

First off, I am apologizing in advance...I should totally know this, but was diagnosed with MS in April, and my brain is...

Do you have questions about starting a career in advocacy?

There's a lot to consider before you begin you career in advocacy. Do you have questions about how to make money, get...

The Reality When You Live With a Rare Condition

The Reality of me living with a rare disease and what goes through my mind constantly. I wake every morning with the...

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