The Reality When You Live With a Rare ConditionThe Reality of me living with a rare disease and what goes through my mind constantly. I wake every morning with the...reactions1replyCoping
Disease Specific Medical Conferences Hello fellow advocates!! I was wondering how many of you attend conferences related to your specific diseases? We want to be the...reactions3repliesCommunityAwarenessTreatment
Business or AdvocacyOn your public advocacy journey have you found it challenging moving towards the business elements? For many being a patient advocate is...reactionsrepliesAdvocacyAwarenessTips & Advice
Do you have an advocacy question? Need advice or tips from our team of expert patient advocates? Ask it here!...reactionsrepliesAdvocacyTips & Advice
Goal Setting: How Do YOU Use Social Media as an Advanced Health Leader?Have you started to set goals around your social media advocacy? Tell us your top three goals using the following bullet points...reactions2repliesAdvocacySocial MediaSocial Health
ForgivenessBeing an advocate can be super stressful. Sometimes we blame ourselves for things we have no control over. We become our own...reactions10repliesCoping
FeaturedWhat have you found helpful in getting started sharing your health advocacy journey?If you are an experienced health leader and advocate, what advice or tips can you give to someone looking to get started...reactions8repliesAdvocacyCommunity
Website issueWhen I go to click the button to go to my dashboard I get this error...reactions7replies